Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
Our main research aims to understand how people can usually distinguish a light touch from painful stimuli. However, for individuals with chronic conditions, this distinction can be altered and nonpainful stimuli (light touch and cooling) can be perceived as painful. In Multiple Sclerosis (MS), detecting early changes in sensory function and biological markers is crucial […]
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
Making it Personal: Identifying personalised triggers of fatigue in multiple sclerosis using N-of-1 studies
This research study aims to discover factors that worsen feelings of fatigue in people living with multiple sclerosis (MS). Most research studies explore topics like this using scientific approaches that report the average results of a large group of people, rather than focusing on identifying results for each individual. As a result, there is limited […]
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
To investigate the molecular changes over the disease, we will meet the participants once every 3 months for 1h over a 2-year period. During each meeting, we will collect a venous blood sample (~5-10 minutes), ask you to fill out a survey (~10-20 minutes) and describe your response to a range of mechanical and thermal […]
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link: https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
Relationships between Objective Sleep, Mental Health, Fatigue, and Sleep Disorders in MS
People with MS commonly report having poor sleep. Not much is known about how fatigue, sleeping issues like insomnia, and mental health issues like depression or anxiety are related to sleep in people with MS. These are common symptoms in MS but are poorly understood in research and clinical practice. This research represents an important […]