Tailoring nutrition research to the multiple sclerosis (MS) community.
We are inviting adults with multiple sclerosis (MS) living in Australia to participate in an online survey to capture their opinions about the future directions of nutrition research for people with multiple sclerosis. The survey has been designed to include questions that will allow us to gain a better understanding of the needs of the […]
Developing ‘Nutrition and MS’ educational tool for healthcare professionals: Gathering healthcare professionals and people living with MS perspectives through separate co-design workshops
What is a co-design workshop? A collaborative session where your insights and ideas will help us design an educational tool on nutrition and MS for healthcare professionals. This is going to be a separate workshop for healthcare professionals and people living with MS. Why participate? Your experience and insights are invaluable. Together, we […]
Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
Our main research aims to understand how people can usually distinguish a light touch from painful stimuli. However, for individuals with chronic conditions, this distinction can be altered and nonpainful stimuli (light touch and cooling) can be perceived as painful. In Multiple Sclerosis (MS), detecting early changes in sensory function and biological markers is crucial […]
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
Making it Personal: Identifying personalised triggers of fatigue in multiple sclerosis using N-of-1 studies
This research study aims to discover factors that worsen feelings of fatigue in people living with multiple sclerosis (MS). Most research studies explore topics like this using scientific approaches that report the average results of a large group of people, rather than focusing on identifying results for each individual. As a result, there is limited […]
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
To investigate the molecular changes over the disease, we will meet the participants once every 3 months for 1h over a 2-year period. During each meeting, we will collect a venous blood sample (~5-10 minutes), ask you to fill out a survey (~10-20 minutes) and describe your response to a range of mechanical and thermal […]