Anxiety in Multiple Sclerosis
We are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. We are also interested in comparing these factors to those without an illness. Participants will be requested to fill out an online questionnaire at three different time points. Time 1: Fill out an ~30min questionnaire. […]
Efficacy and Safety of Ofatumumab and Siponimod Compared to Fingolimod in Pediatric Patients With Multiple Sclerosis (NEOS)
Efficacy and safety of ofatumumab and siponimod compared to fingolimod in pediatric patients with multiple sclerosis
Living Well with MS – Invisible Symptoms, Health Routines and Digital Technology
This study will explore the strategies people with MS use to manage living with unpredictable (and often invisible) symptoms. It will ask about your experience with healthcare and explore how technology may help you manage your MS. The first phase of the project is this 10-minute survey. At the end of the survey, you will […]
MS Genetics Project (GEMS Study)
We need your help to investigate the Epstein-Barr Virus (EBV) strain that may play a crucial role in developing multiple sclerosis (MS). This study also aims to identify specific markers in the blood associated with onset and progression of MS. The knowledge gained will be used to greatly improve MS diagnosis, treatment and prevention.
Understanding the perspectives of people with physical disabilities on using sexual assistive devices
We are seeking individuals with physical disabilities to take part in an online approx. hour-long interview which will be conducted online via Microsoft Teams. The aim of this study is to examine the perspectives of individuals with physical disabilities on the use of sexual assistive devices (for the purpose of this study the term ‘sexual […]
The use of clinical practice guidelines for the management of multiple sclerosis in Australia
Clinical practice guidelines are often developed to improve care based on the latest evidence. However, there is no official obligation to adhere to guideline recommendations in Australia and it remains unclear whether clinicians use guidelines for MS management. We aim to explore the extent to which MS clinicians providing treatment to people with MS are […]
Exploring the use and need for lifestyle management of multiple sclerosis
This study is a survey of people living with Multiple Sclerosis to explore the use of lifestyle factors such as nutrition, exercise and stress management for symptom management. It will investigate the need for information, priorities for lifestyle areas and opinions in relation health care support for this form of self-management.
“Why are young people (still) stuck in residential aged care?”
This research is mixed methods study seeking to understand the NDIS from the perspective of young people living in residential aged care (YPIRAC). It explores the housing needs and preferences of YPIRAC and the barriers experienced in achieving housing choice and control in the NDIS context.
Reproductive Technology in Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorders (ARTiMS)
The purpose of this study is to improve the quality of care that women with Multiple Sclerosis (MS) or Neuromyelitis Optica Spectrum Disorder (NMOSD) receive while using Assisted Reproductive Technology (ART). We’re inviting women with MS or NMOSD who have already used ART to take part in surveys and interviews to discuss if and where […]
Project BASE: Changing Behaviour towards Aerobic and Resistance Exercise
Engaging in physical activity is beneficial to the wellbeing of people with MS. The aim of the study is to assess the feasibility of a study designed to involve people with MS in an exercise program. You’ll take part in a four-month at home exercise program, guided by our team of BASE physiotherapists, occupational therapists […]