Living Well with MS – Invisible Symptoms, Health Routines and Digital Technology

type of intervention

Non-interventional (on-line survey. optional focus group)

recruitment status

Recruiting

region

ACT, NSW, NT, QLD, SA, TAS, VIC, WA

type of ms

Primary progressive MS, Relapsing MS, Relapsing remitting MS, Secondary progressive MS

Brief summary

This study will explore the strategies people with MS use to manage living with unpredictable (and often invisible) symptoms. It will ask about your experience with healthcare and explore how technology may help you manage your MS. The first phase of the project is this 10-minute survey. At the end of the survey, you will be asked whether you would like to be considered to participate in future focus groups to talk about how digital technology might or might not make your life easier and/or a longer anonymous survey on the topic of health technology and your approach to maintaining your healthy lifestyle routines (with or without technology).
Survey can be found here.

Inclusion Criteria

A) Aged 18 or over
B) English speakers
C) Formal diagnosis of MS (self-reported)

Anticipated start date

Already started

Recruitment Contacts

Dr. Maya Panisset
Maya.panisset@unimelb.edu.au

Further Details

https://redcap.link/MS_Digital_Tech

Region

NSW/ACT/SA/VIC/QLD/WA/TAS/NT

Ethics Approval

This research project has been approved by the Human Research Ethics Committees of The University of Melbourne and La Trobe University (HERC 2023-25957-37290-2)

Last updated

04/09/2023

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