The QUEST Global initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]
Experiences of optic neuritis
Brief summary We are interested to hear from those who have had an episode of optic neuritis in the last 10 years, and learn of your visual experiences following this episode, and your current visual function. The aim of the project is to explore the quality of life and visual experiences of those with optic […]
Eating Well with MS: Improving diet quality among people with multiple sclerosis using digital nutrition education
Brief summary Eating Well With MS is a fully online nutrition education program designed for people living with multiple sclerosis. It aims to improve diet quality by supporting healthy, evidence-based dietary behaviours through practical and accessible education. The program consists of six self-paced modules, taking approximately one hour per week to complete, plus a 3-month […]
Three-dimensional texture modified food printing for people with multiple sclerosis-related dysphagia
Brief summary This research explores the feasibility, acceptability, and implementation of 3D-printed texture-modified foods for individuals with multiple sclerosis (MS) who experience dysphagia (chewing and swallowing difficulties). The project aims to identify facilitators and barriers to incorporating these innovative food options into MS diets, focusing on nutritional adequacy, sensory appeal, and practical considerations. The study […]
HeARTS Physical activity factors among people living with multiple sclerosis
Brief summary Join the HeARTS Global Survey! Are you living with multiple sclerosis (MS)? Your experience matters! The HeARTS global survey, coordinated by the European Network for Research and Best Practice in MS Rehabilitation (RIMS), aims to better understand physical activity levels in people with MS across all abilities and countries. Your input will help […]
Validating scales of fatigue in multiple sclerosis
Brief summary Researchers from the Australian National University (ANU), in Canberra, Australia, are seeking volunteers with multiple sclerosis (MS) to complete an online survey about their experiences of fatigue as part of a study to develop a measure of fatigue for people living with MS. The survey is confidential and should take between 15 and […]
Collecting better data on sleep in people living with MS
Brief summary Measuring sleep well is not straightforward. In this study, we would like to work out how to best measure sleep in people with MS, and we would like to seek your feedback on the acceptability of different ways of measuring sleep. The different ways of measuring include using an activity monitor (a research […]
A co-design study to develop a tailored internet psychological intervention for depression among individuals with MS
The aim of this project is to use a co-design study to inform the development of an internet-based intervention for depression targeting individuals with multiple sclerosis (MS). We will run co-design/focus groups or individual interviews with individuals with MS, health professionals who treat individuals with MS and carers of those with MS. We aim to […]
The Multiple Sclerosis Australian Women’s Midlife Years (MS-AMY) Study
Researchers at Monash University are undertaking a study to understand the physical health and psychological, sexual and socioeconomic wellbeing of Australian midlife women living with MS. The team wants to assess the contribution of common midlife circumstances, including the impact of menopause, on the quality of life of women living with MS. Surprisingly very little […]
STRONG-MS: Bone health and muscle health in MS
This study is a randomised controlled trial evaluating ONERO™. This is a High-intensity Resistance and Impact Training (HiRIT) exercise intervention that has potential benefits for bone health and muscle strength in people with (MS). Qualified physiotherapists will supervise balance exercises, impact movements and weightlifting in twice-weekly, 30-minute sessions. Participation involves a total of 24 months. […]