Validating scales of fatigue in multiple sclerosis
Brief summary Researchers from the Australian National University (ANU), in Canberra, Australia, are seeking volunteers with multiple sclerosis (MS) to complete an online survey about their experiences of fatigue as part of a study to develop a measure of fatigue for people living with MS. The survey is confidential and should take between 15 and […]
Collecting better data on sleep in people living with MS
Brief summary Measuring sleep well is not straightforward. In this study, we would like to work out how to best measure sleep in people with MS, and we would like to seek your feedback on the acceptability of different ways of measuring sleep. The different ways of measuring include using an activity monitor (a research […]
A co-design study to develop a tailored internet psychological intervention for depression among individuals with MS
The aim of this project is to use a co-design study to inform the development of an internet-based intervention for depression targeting individuals with multiple sclerosis (MS). We will run co-design/focus groups or individual interviews with individuals with MS, health professionals who treat individuals with MS and carers of those with MS. We aim to […]
The Multiple Sclerosis Australian Women’s Midlife Years (MS-AMY) Study
Researchers at Monash University are undertaking a study to understand the physical health and psychological, sexual and socioeconomic wellbeing of Australian midlife women living with MS. The team wants to assess the contribution of common midlife circumstances, including the impact of menopause, on the quality of life of women living with MS. Surprisingly very little […]
STRONG-MS: Bone health and muscle health in MS
This study is a randomised controlled trial evaluating ONERO™. This is a High-intensity Resistance and Impact Training (HiRIT) exercise intervention that has potential benefits for bone health and muscle strength in people with (MS). Qualified physiotherapists will supervise balance exercises, impact movements and weightlifting in twice-weekly, 45-minute sessions. Participation involves a total of 24 months. […]
Multiple Sclerosis and the NDIS: What Does and Doesn’t Work?
These interviews are part of a larger project titled ‘Assessing the impact of the National Disability Insurance Scheme (NDIS)’, funded by MS Australia. It is the first of its kind to produce an overview of National Disability Insurance Scheme (NDIS) access for people with multiple sclerosis in Australia. These interviews will explore the challenges and […]
Social needs screening in MS care
Are you, or do you care for, a person with multiple sclerosis who has experienced unstable housing, family violence, or difficulty paying for food or bills? Researchers from The University of Melbourne invite people with MS and carers of people with MS to participate in focus groups or one-on-one interviews to explore how we can […]
Reinforcement Learning in MS
The main aim of the present study is to understand how the context of risks affect learning. The project involves patients with Multiple Sclerosis and healthy controls to complete online questionnaires and play a series of decision making games.
PLATYPUS – the Australian extension of the OCTOPUS trial
PLATYPUS is the Australian extension of a revolutionary trial based in the United Kingdom (UK) called OCTOPUS, which aims to enroll participants in the UK and Australia over the next few years. OCTOPUS (including PLATYPUS) is a trial which will test multiple treatments with the aim to find one that can slow down, and ultimately […]
Phase III, multicentre, randomised, double-blinded, placebo-controlled, MAMS trial of SpironolacTone and famciclOvir in the treatment of Progressive MS to prevent disability progression (STOP-MS)
Multiple sclerosis (MS) is a potentially devastating disease of the central nervous system and progressive MS, which occurs in up to two-thirds is the most severe form. Current therapies for MS have limited effect in the progressive stage. Recent studies have confirmed that the primary cause of MS is latent infection with Epstein-Barr virus (EBV). […]