Lived experience of peripheral oedema in people living with acquired neurological conditions
type of intervention
Non-interventional, Survey
recruitment status
Recruiting
region
ACT, NSW, NT, NZ, QLD, SA, TAS, VIC, WA
type of ms
Clinically isolated syndrome, Primary progressive MS, Relapsing MS, Relapsing remitting MS, Secondary progressive MS
Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling.
The information collected from your lived experience will provide valuable insights and be the first step toward establishing future prevalence data, education, and earlier monitoring for oedema, and toward developing suitable intervention strategies.
- Participants living with Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke.
- Living with the condition for 6 months or longer.
- Must have a proficient level of English to provide informed consent to complete the survey.
- Aged 18 years or older living in Australia
Currently recruiting
Dr Vincent Paramanandam,
E: vincentsingh.paramanandam.mq.edu.au P: +61 2 9850 2349
Emily Muldoon,
E: emily.muldoon@hdr.mq.edu.au P: 0490 971 554
- Full details and access to the survey for completion is available via the following link - https://mquni.au1.qualtrics.com/jfe/form/SV_4JEgvdh2NX746WO
Or
- Click on the Flyer and access the survey using the QR code in the flyer.
NSW/ACT/SA/VIC/QLD/WA/TAS/NZ
Yes
20/04/2026
