Physical activity and exercise among people with advanced multiple sclerosis

type of intervention

Non-interventional, Qualitative interview study, Survey

recruitment status

Recruiting

region

ACT, NSW, NT, QLD, SA, TAS, VIC, WA

type of ms

Primary progressive MS, Relapsing MS, Relapsing remitting MS, Secondary progressive MS

Brief Summary

Physical activity and exercise play important roles in managing multiple sclerosis. While the benefits of physical activity and exercise for individuals with less disability are well-established, the effects in people with more advanced multiple sclerosis, i.e. those who use assistive devices or are non-ambulatory, are less clear. Less is known about the factors that influence people with more advanced or severe forms of multiple sclerosis to participate in physical activity and exercise, and considerations for people living specifically in Australia.

We hope to explore the experiences of Australians with advanced multiple sclerosis engaging with physical activity and exercise via an online survey and semi-structured interviews. The goal is to inform physical activity and exercise clinical practices that align with the unique needs of individuals with advanced multiple sclerosis within Australia’s healthcare system.

Inclusion Criteria
  • Diagnosis of MS by a medical practitioner
  • EDSS ≥ 6.0 or Patient-determined Disease Step scale ≥ 5, and use an assistive device for moving around or are non-ambulatory
  • Australian resident
  • Aged 18 years or older
  • Sufficient English proficiency to complete a survey and or interview
Exclusion Criteria
  • Any other neurological conditions, such as Parkinson's disease, spinal cord injury, atroke and or a traumatic brain injury
Anticipated Sart Date

Currently recruiting

Recruitment Contacts

Dr Suzanne Máté,

School of Health Sciences,

Faculty of Medicine and Health

University of Sydney

E: suzanne.mate@sydney.edu.au

P: +61 2 9351 9566

Further Information

To take part in the online survey, please click here.

To view the flyer, please click here.

Region

NSW/ACT/SA/VIC/QLD/WA/TAS/NT

Ethics

Yes

Last Updated

29/04/2026

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