Non-invasive Spinal Cord Stimulation: Consumer Perspectives and Priorities
Non-invasive spinal cord stimulation “spinal stim” is a new treatment. Most of the research so far has been with people who have a spinal cord injury. There are early signs it may also help people with other neurological conditions, with movement and with other body functions. Researchers at The University of Melbourne are seeking people […]
HYDRA: Housing Needs and Aspirations of Young People with Disability in Rural and Regional Australia
Researchers at the University of Melbourne are seeking young people aged 18-34 years who have a disability; and live outside big cities, in rural and regional areas to take part in interviews about their future housing aspirations. The interviews will focus on your current living situation, your goals for the future, and what may […]
Understanding Diagnostic Delay in Multiple Sclerosis
Getting a diagnosis of multiple sclerosis (MS) can take time and feel uncertain. Researchers at The University of Queensland are running a short, anonymous online survey to learn from people’s own experiences of the path to an MS diagnosis: when symptoms first started, how people sought help, which health professionals and tests were involved, how […]
Establishing Priorities for the Treatment of Mental Health Difficulties in People living with Multiple Sclerosis
Despite advances in healthcare and occupational rehabilitation, people living with MS often experience ongoing difficulties across their professional and personal lives, which then impact their mental health. Speaking to this, people living with MS have a higher prevalence rate of anxiety, depression, substance abuse, bipolar, suicidality, and psychosis, compared to the general population. Mental health […]
ACTION-MS online: an online tailored depression intervention for people with multiple sclerosis
The current randomised controlled trial will examine whether the 8-week internet-based ACTION-MS online depression intervention is feasible, acceptable and effective in the treatment of mild to moderate levels of depressive symptoms in people with MS. We will also be looking at the cost-effectiveness of providing this online intervention as part of routine care for people with […]
Physical activity and exercise among people with advanced multiple sclerosis
Brief summary Physical activity and exercise play important roles in managing multiple sclerosis. While the benefits of physical activity and exercise for individuals with less disability are well-established, the effects in people with more advanced multiple sclerosis, i.e. those who use assistive devices or are non-ambulatory, are less clear. Less is known about the factors […]
Lived experience of peripheral oedema in people living with acquired neurological conditions
Brief summary Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling. The information collected from your lived […]
Exploring Self-Management Lifestyle Interventions in People Living with Multiple Sclerosis in Rural and Regional Australia
Brief summary Multiple sclerosis (MS) is an inflammatory neurological disease of the central nervous system. There are several pharmacological treatments available to treat symptoms, relapses, and in some cases, progression, but there is no cure for MS. However, there is evidence that shows lifestyle changes can help people improve mental and physical health, quality of […]
The QUEST Global initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]
Experiences of optic neuritis
Brief summary We are interested to hear from those who have had an episode of optic neuritis in the last 10 years, and learn of your visual experiences following this episode, and your current visual function. The aim of the project is to explore the quality of life and visual experiences of those with optic […]