HYDRA: Housing Needs and Aspirations of Young People with Disability in Rural and Regional Australia
Researchers at the University of Melbourne are seeking young people aged 18-34 years who have a disability; and live outside big cities, in rural and regional areas to take part in interviews about their future housing aspirations. The interviews will focus on your current living situation, your goals for the future, and what may […]
Understanding Diagnostic Delay in Multiple Sclerosis
Getting a diagnosis of multiple sclerosis (MS) can take time and feel uncertain. Researchers at The University of Queensland are running a short, anonymous online survey to learn from people’s own experiences of the path to an MS diagnosis: when symptoms first started, how people sought help, which health professionals and tests were involved, how […]
Establishing Priorities for the Treatment of Mental Health Difficulties in People living with Multiple Sclerosis
Despite advances in healthcare and occupational rehabilitation, people living with MS often experience ongoing difficulties across their professional and personal lives, which then impact their mental health. Speaking to this, people living with MS have a higher prevalence rate of anxiety, depression, substance abuse, bipolar, suicidality, and psychosis, compared to the general population. Mental health […]
ACTION-MS online: an online tailored depression intervention for people with multiple sclerosis
The current randomised controlled trial will examine whether the 8-week internet-based ACTION-MS online depression intervention is feasible, acceptable and effective in the treatment of mild to moderate levels of depressive symptoms in people with MS. We will also be looking at the cost-effectiveness of providing this online intervention as part of routine care for people with […]
Can combining brain and nerve stimulation improve muscle activity in multiple sclerosis?
Brief summary This project will evaluate the effects of a non-invasive technique known as paired corticospinal-motoneuronal stimulation (PCMS), which uses precisely timed magnetic brain stimulations (from transcranial magnetic stimulation, TMS) and peripheral nerve stimulations. PCMS aims to strengthen brain and spinal cord connection strength, and may result in stronger, more efficient muscle activation, even in […]
Young adults perceptions of responsibility for the management of chronic health conditions
Brief summary Researchers at The University of Queensland are seeking young adults aged 18–25 years with a diagnosed chronic health condition to participate in a study exploring how healthcare responsibilities are managed during emerging adulthood. The study aims to understand whether young adults manage healthcare independently or share responsibilities with others, such as parents, family […]
Healthcare Experiences of People with Multiple Sclerosis or Inflammatory Bowel Disease in Australia
Brief summary A research group at Deakin University is inviting people aged 18 years and over with Multiple Sclerosis (MS) or Inflammatory Bowel Disease (IBD) to share their experiences of diagnosis and management within the Australian healthcare system. Taking part involves completing a short online survey (about 10 minutes) about your demographic and health information […]
Physical activity and exercise among people with advanced multiple sclerosis
Brief summary Physical activity and exercise play important roles in managing multiple sclerosis. While the benefits of physical activity and exercise for individuals with less disability are well-established, the effects in people with more advanced multiple sclerosis, i.e. those who use assistive devices or are non-ambulatory, are less clear. Less is known about the factors […]
Vumerity (Diroximel Fumarate) Prospective MS Pregnancy Exposure Registry
Brief summary This is a global, prospective, observational pregnancy exposure registry designed to evaluate pregnancy and infant outcomes following exposure to diroximel fumarate (Vumerity) in individuals with multiple sclerosis (MS). The registry aims to characterise the risk of major congenital malformations (MCMs) and other adverse pregnancy outcomes associated with DRF exposure during pregnancy.
Lived experience of peripheral oedema in people living with acquired neurological conditions
Brief summary Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling. The information collected from your lived […]