The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia.
Researchers from the College of Health and Medicine at the Australian National University are conducting a survey to examine the impact of out-of-pocket health costs on people with chronic conditions and carers. Understanding the impact of these on the day-to-day lives of people living with chronic conditions will provide important new knowledge, and an opportunity […]
Multiple Sclerosis and the NDIS: What Does and Doesn’t Work?
These interviews are part of a larger project titled ‘Assessing the impact of the National Disability Insurance Scheme (NDIS)’, funded by MS Australia. It is the first of its kind to produce an overview of National Disability Insurance Scheme (NDIS) access for people with multiple sclerosis in Australia. These interviews will explore the challenges and […]
The Acceptability and Effectiveness of an ACT-informed Guided Self-Help Programme on Post-Diagnostic Adjustment and Self-Concept in Individuals with Multiple Sclerosis
The general aim of this study is to assess whether an Acceptance and Commitment Therapy (ACT) informed programme can positively influence the adjustment and self-concept of people who have been diagnosed with MS over the past 5 years. The study will also look at how the above can influence mental well-being. Acceptance and Commitment Therapy […]
Tailoring nutrition research to the multiple sclerosis (MS) community.
We are inviting adults with multiple sclerosis (MS) living in Australia to participate in an online survey to capture their opinions about the future directions of nutrition research for people with multiple sclerosis. The survey has been designed to include questions that will allow us to gain a better understanding of the needs of the […]
Developing ‘Nutrition and MS’ educational tool for healthcare professionals: Gathering healthcare professionals and people living with MS perspectives through separate co-design workshops
What is a co-design workshop? A collaborative session where your insights and ideas will help us design an educational tool on nutrition and MS for healthcare professionals. This is going to be a separate workshop for healthcare professionals and people living with MS. Why participate? Your experience and insights are invaluable. Together, we […]
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
Making it Personal: Identifying personalised triggers of fatigue in multiple sclerosis using N-of-1 studies
This research study aims to discover factors that worsen feelings of fatigue in people living with multiple sclerosis (MS). Most research studies explore topics like this using scientific approaches that report the average results of a large group of people, rather than focusing on identifying results for each individual. As a result, there is limited […]
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
ACT-Sydney Multiple Sclerosis (MS) cohort study
As part of the Our Health in Our Hands (OHIOH) project, researchers at the Australian National University and Sydney Adventist Hospital are working together to improve the clinical management and overall health and wellbeing of people living with multiple sclerosis (MS). In this study we are recruiting people with MS as well as people who […]