Non-invasive Spinal Cord Stimulation: Consumer Perspectives and Priorities
Non-invasive spinal cord stimulation “spinal stim” is a new treatment. Most of the research so far has been with people who have a spinal cord injury. There are early signs it may also help people with other neurological conditions, with movement and with other body functions. Researchers at The University of Melbourne are seeking people […]
HYDRA: Housing Needs and Aspirations of Young People with Disability in Rural and Regional Australia
Researchers at the University of Melbourne are seeking young people aged 18-34 years who have a disability; and live outside big cities, in rural and regional areas to take part in interviews about their future housing aspirations. The interviews will focus on your current living situation, your goals for the future, and what may […]
Young adults perceptions of responsibility for the management of chronic health conditions
Brief summary Researchers at The University of Queensland are seeking young adults aged 18–25 years with a diagnosed chronic health condition to participate in a study exploring how healthcare responsibilities are managed during emerging adulthood. The study aims to understand whether young adults manage healthcare independently or share responsibilities with others, such as parents, family […]
Healthcare Experiences of People with Multiple Sclerosis or Inflammatory Bowel Disease in Australia
Brief summary A research group at Deakin University is inviting people aged 18 years and over with Multiple Sclerosis (MS) or Inflammatory Bowel Disease (IBD) to share their experiences of diagnosis and management within the Australian healthcare system. Taking part involves completing a short online survey (about 10 minutes) about your demographic and health information […]
Physical activity and exercise among people with advanced multiple sclerosis
Brief summary Physical activity and exercise play important roles in managing multiple sclerosis. While the benefits of physical activity and exercise for individuals with less disability are well-established, the effects in people with more advanced multiple sclerosis, i.e. those who use assistive devices or are non-ambulatory, are less clear. Less is known about the factors […]
Vumerity (Diroximel Fumarate) Prospective MS Pregnancy Exposure Registry
Brief summary This is a global, prospective, observational pregnancy exposure registry designed to evaluate pregnancy and infant outcomes following exposure to diroximel fumarate (Vumerity) in individuals with multiple sclerosis (MS). The registry aims to characterise the risk of major congenital malformations (MCMs) and other adverse pregnancy outcomes associated with DRF exposure during pregnancy.
Lived experience of peripheral oedema in people living with acquired neurological conditions
Brief summary Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling. The information collected from your lived […]
Exploring Self-Management Lifestyle Interventions in People Living with Multiple Sclerosis in Rural and Regional Australia
Brief summary Multiple sclerosis (MS) is an inflammatory neurological disease of the central nervous system. There are several pharmacological treatments available to treat symptoms, relapses, and in some cases, progression, but there is no cure for MS. However, there is evidence that shows lifestyle changes can help people improve mental and physical health, quality of […]
The QUEST Global initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]
Collecting better data on sleep in people living with MS
Brief summary Measuring sleep well is not straightforward. In this study, we would like to work out how to best measure sleep in people with MS, and we would like to seek your feedback on the acceptability of different ways of measuring sleep. The different ways of measuring include using an activity monitor (a research […]