The Multiple Sclerosis Australian Women’s Midlife Years (MS-AMY) Study

type of intervention

Non-interventional, Survey

recruitment status

Recruiting

region

ACT, NSW, NT, QLD, SA, TAS, VIC, WA

type of ms

Primary progressive MS, Relapsing MS, Relapsing remitting MS, Secondary progressive MS

Brief summary

Researchers at Monash University are undertaking a study to understand the physical health and psychological, sexual and socioeconomic wellbeing of Australian midlife women living with MS.  The team wants to assess the contribution of common midlife circumstances, including the impact of menopause, on the quality of life of women living with MS. Surprisingly very little is known about this.

This study involves answering an online survey that will take between about 30-45 minutes to complete. The survey is hosted by Roy Morgan Research on behalf of Monash University.   You will have the option to complete the survey in one sitting, or across multiple sittings if needed.

Inclusion criteria
  • All women aged between 40-69 currently living in Australia
  • Must have a diagnosis of MS made by a neurologist (All forms of MS)
Exclusion Criteria
  • Women outside of the above age range
  • Women not currently living in Australia
  • Women who do not have MS
  • Women who are unable to read or understand English sufficiently to answer the written survey questions
Anticipated Start Date

July 2025

Recruitment Contacts

This study is being undertaken by A/Prof Vilija Jokubaitis and Prof Susan Davis. For more details you can contact the study team on:

Study coordinator: ms-amy@monash.edu or 1800 384 844

Vilija Jokubaitis: vilija.jokubaitis@monash.edu

Further details

MS-AMY Flyer

MS-AMY study Explanatory statement

This study is funded by a Multiple Sclerosis Australia Project Grant 24-PG-0155

Ethics

Yes

Last Updated

28/07/2025

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