Vumerity (Diroximel Fumarate) Prospective MS Pregnancy Exposure Registry
Brief summary This is a global, prospective, observational pregnancy exposure registry designed to evaluate pregnancy and infant outcomes following exposure to diroximel fumarate (Vumerity) in individuals with multiple sclerosis (MS). The registry aims to characterise the risk of major congenital malformations (MCMs) and other adverse pregnancy outcomes associated with DRF exposure during pregnancy.
Lived experience of peripheral oedema in people living with acquired neurological conditions
Brief summary Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling. The information collected from your lived […]
Exploring Self-Management Lifestyle Interventions in People Living with Multiple Sclerosis in Rural and Regional Australia
Brief summary Multiple sclerosis (MS) is an inflammatory neurological disease of the central nervous system. There are several pharmacological treatments available to treat symptoms, relapses, and in some cases, progression, but there is no cure for MS. However, there is evidence that shows lifestyle changes can help people improve mental and physical health, quality of […]
The QUEST Global initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]
Experiences of optic neuritis
Brief summary We are interested to hear from those who have had an episode of optic neuritis in the last 10 years, and learn of your visual experiences following this episode, and your current visual function. The aim of the project is to explore the quality of life and visual experiences of those with optic […]
Three-dimensional texture modified food printing for people with multiple sclerosis-related dysphagia
Brief summary This research explores the feasibility, acceptability, and implementation of 3D-printed texture-modified foods for individuals with multiple sclerosis (MS) who experience dysphagia (chewing and swallowing difficulties). The project aims to identify facilitators and barriers to incorporating these innovative food options into MS diets, focusing on nutritional adequacy, sensory appeal, and practical considerations. The study […]
Collecting better data on sleep in people living with MS
Brief summary Measuring sleep well is not straightforward. In this study, we would like to work out how to best measure sleep in people with MS, and we would like to seek your feedback on the acceptability of different ways of measuring sleep. The different ways of measuring include using an activity monitor (a research […]
Asymmetry of Muscle Activation in Multiple Sclerosis
Brief summary Our research uses advanced neuroscience techniques to explore how the nervous system controls muscles in multiple sclerosis, with a particular focus on muscle weakness, fatigue and sensorimotor function. Ultimately, we aim to identify how specific neurophysiological changes due to MS influence movement and disability (e.g. mobility impairment) so that future treatments can be […]
The Multiple Sclerosis Australian Women’s Midlife Years (MS-AMY) Study
Researchers at Monash University are undertaking a study to understand the physical health and psychological, sexual and socioeconomic wellbeing of Australian midlife women living with MS. The team wants to assess the contribution of common midlife circumstances, including the impact of menopause, on the quality of life of women living with MS. Surprisingly very little […]
Clinical trial of lifestyle interventions for weight management in adults living with MS
Obesity can increase the risk of developing MS and may increase levels of disability in those with established MS. Losing weight can help improve more than just body size, but it can be difficult to do and needs the support of a healthcare team to aid behaviour change. This study will use a tested method […]