The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia.
Researchers from the College of Health and Medicine at the Australian National University are conducting a survey to examine the impact of out-of-pocket health costs on people with chronic conditions and carers. Understanding the impact of these on the day-to-day lives of people living with chronic conditions will provide important new knowledge, and an opportunity […]
Multiple Sclerosis and the NDIS: What Does and Doesn’t Work?
These interviews are part of a larger project titled ‘Assessing the impact of the National Disability Insurance Scheme (NDIS)’, funded by MS Australia. It is the first of its kind to produce an overview of National Disability Insurance Scheme (NDIS) access for people with multiple sclerosis in Australia. These interviews will explore the challenges and […]
The Acceptability and Effectiveness of an ACT-informed Guided Self-Help Programme on Post-Diagnostic Adjustment and Self-Concept in Individuals with Multiple Sclerosis
The general aim of this study is to assess whether an Acceptance and Commitment Therapy (ACT) informed programme can positively influence the adjustment and self-concept of people who have been diagnosed with MS over the past 5 years. The study will also look at how the above can influence mental well-being. Acceptance and Commitment Therapy […]
Tailoring nutrition research to the multiple sclerosis (MS) community.
We are inviting adults with multiple sclerosis (MS) living in Australia to participate in an online survey to capture their opinions about the future directions of nutrition research for people with multiple sclerosis. The survey has been designed to include questions that will allow us to gain a better understanding of the needs of the […]
Developing ‘Nutrition and MS’ educational tool for healthcare professionals: Gathering healthcare professionals and people living with MS perspectives through separate co-design workshops
What is a co-design workshop? A collaborative session where your insights and ideas will help us design an educational tool on nutrition and MS for healthcare professionals. This is going to be a separate workshop for healthcare professionals and people living with MS. Why participate? Your experience and insights are invaluable. Together, we […]
Determining factors influencing implementation decisions in healthcare
This study aims to ascertain relevant considerations and contextual factors that influence stakeholders’ decisions to implement innovations. An innovation may be a new intervention, strategy, model of care, or therapy. This study has a particular focus on economic factors but will also explore non-economic factors influencing implementation. We will use a discrete choice experiment methodology […]
A randomized, double-blind, Phase 3 study comparing efficacy and safety of SAR441344 to placebo in adult participants with non-relapsing secondary progressive multiple sclerosis (FREVIVA)
This is a Phase 3 clinical trial. Its aim is to demonstrate the efficacy and safety of an investigational drug compared to placebo in participants with Secondary Progressive MS. Globally, approximately 868 participants will be randomly assigned to the investigational drug or placebo. This is a double-blind study. This means the study doctor and participant […]
Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
Our main research aims to understand how people can usually distinguish a light touch from painful stimuli. However, for individuals with chronic conditions, this distinction can be altered and nonpainful stimuli (light touch and cooling) can be perceived as painful. In Multiple Sclerosis (MS), detecting early changes in sensory function and biological markers is crucial […]