Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
Our main research aims to understand how people can usually distinguish a light touch from painful stimuli. However, for individuals with chronic conditions, this distinction can be altered and nonpainful stimuli (light touch and cooling) can be perceived as painful. In Multiple Sclerosis (MS), detecting early changes in sensory function and biological markers is crucial […]
Carers’ experiences of providing care and support for a person living with a long-term health condition
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
Neural mechanisms of pain: Relapsing and Remitting Multiple Sclerosis Cohort
To investigate the molecular changes over the disease, we will meet the participants once every 3 months for 1h over a 2-year period. During each meeting, we will collect a venous blood sample (~5-10 minutes), ask you to fill out a survey (~10-20 minutes) and describe your response to a range of mechanical and thermal […]
ACT-Sydney Multiple Sclerosis (MS) cohort study
As part of the Our Health in Our Hands (OHIOH) project, researchers at the Australian National University and Sydney Adventist Hospital are working together to improve the clinical management and overall health and wellbeing of people living with multiple sclerosis (MS). In this study we are recruiting people with MS as well as people who […]
Relationships between Objective Sleep, Mental Health, Fatigue, and Sleep Disorders in MS
People with MS commonly report having poor sleep. Not much is known about how fatigue, sleeping issues like insomnia, and mental health issues like depression or anxiety are related to sleep in people with MS. These are common symptoms in MS but are poorly understood in research and clinical practice. This research represents an important […]
Testing Brain-Computer Interfaces for Individuals with Multiple Sclerosis
Brain-computer interfaces (BCIs) use sensors to record brain activity and translate that activity into user-intended commands, which can be used to control a device such as your phone or computer. We are investigating how the brain controls movements and how multiple sclerosis may affect the brain’s activity when thinking about movement. This research could provide […]
Anxiety in Multiple Sclerosis
We are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. We are also interested in comparing these factors to those without an illness. Participants will be requested to fill out an online questionnaire at three different time points. Time 1: Fill out an ~30min questionnaire. […]