Developing ‘Nutrition and MS’ educational tool for healthcare professionals: Gathering healthcare professionals and people living with MS perspectives through separate co-design workshops
What is a co-design workshop? A collaborative session where your insights and ideas will help us design an educational tool on nutrition and MS for healthcare professionals. This is going to be a separate workshop for healthcare professionals and people living with MS. Why participate? Your experience and insights are invaluable. Together, we […]
Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Understanding of ultra-processed food among people with multiple sclerosis
We are inviting adults with multiple sclerosis (MS) living in Australia to participate in an online survey to capture their opinions and understanding of ‘ultra-processed foods’. This project will respond to requests from the MS community for nutrition education tailored for people with MS. This project will be conducted as a sequential mixed methods study […]
Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Carers’ experiences of providing care and support for a person living with a long-term health condition
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
ACT-Sydney Multiple Sclerosis (MS) cohort study
As part of the Our Health in Our Hands (OHIOH) project, researchers at the Australian National University and Sydney Adventist Hospital are working together to improve the clinical management and overall health and wellbeing of people living with multiple sclerosis (MS). In this study we are recruiting people with MS as well as people who […]
Relationships between Objective Sleep, Mental Health, Fatigue, and Sleep Disorders in MS
People with MS commonly report having poor sleep. Not much is known about how fatigue, sleeping issues like insomnia, and mental health issues like depression or anxiety are related to sleep in people with MS. These are common symptoms in MS but are poorly understood in research and clinical practice. This research represents an important […]
Testing Brain-Computer Interfaces for Individuals with Multiple Sclerosis
Brain-computer interfaces (BCIs) use sensors to record brain activity and translate that activity into user-intended commands, which can be used to control a device such as your phone or computer. We are investigating how the brain controls movements and how multiple sclerosis may affect the brain’s activity when thinking about movement. This research could provide […]