Testing a new mobile app prototype to provide personalised food guidance for people living with MS
The study will test a newly developed mobile app prototype for personalised food guidance. You will be asked to participate in a screening questionnaire, using the prototype app for a duration of one week using your smartphone, and an audio-recorded session (face-to-face or online) with the researchers to explore your opinions on the prototype.
ACT-Sydney Multiple Sclerosis (MS) cohort study
As part of the Our Health in Our Hands (OHIOH) project, researchers at the Australian National University and Sydney Adventist Hospital are working together to improve the clinical management and overall health and wellbeing of people living with multiple sclerosis (MS). In this study we are recruiting people with MS as well as people who […]
Relationships between Objective Sleep, Mental Health, Fatigue, and Sleep Disorders in MS
People with MS commonly report having poor sleep. Not much is known about how fatigue, sleeping issues like insomnia, and mental health issues like depression or anxiety are related to sleep in people with MS. These are common symptoms in MS but are poorly understood in research and clinical practice. This research represents an important […]
Testing Brain-Computer Interfaces for Individuals with Multiple Sclerosis
Brain-computer interfaces (BCIs) use sensors to record brain activity and translate that activity into user-intended commands, which can be used to control a device such as your phone or computer. We are investigating how the brain controls movements and how multiple sclerosis may affect the brain’s activity when thinking about movement. This research could provide […]
Anxiety in Multiple Sclerosis
We are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. We are also interested in comparing these factors to those without an illness. Participants will be requested to fill out an online questionnaire at three different time points. Time 1: Fill out an ~30min questionnaire. […]
People with mobility-impairing neurological conditions perspectives about graduated compression stockings to prevent deep vein thrombosis.
This research aims to acquire information on the users’ needs around graduated compression stockings (GCS) and identify the drawbacks of current available GCS designs. Their difficulties in wearing, daily use, and the factors affecting the selection of the compression stockings, will be identified in the online survey and focus group using Zoom. To identify the […]
Living Well with MS – Invisible Symptoms, Health Routines and Digital Technology
This study will explore the strategies people with MS use to manage living with unpredictable (and often invisible) symptoms. It will ask about your experience with healthcare and explore how technology may help you manage your MS. The first phase of the project is this 10-minute survey. At the end of the survey, you will […]
Adjustment to Multiple Sclerosis: Exploring the Roles of Benefit Finding, Identity Reconstruction and Psychological Flexibility.
The goal of this project is to better understand people’s experiences with and adjustment to Multiple Sclerosis. If you choose to take part you will be invited to complete an online survey. The survey will take approximately 30 minutes to complete. Participants will be asked a range of questions relating to the following: background (e.g. […]
Understanding the perspectives of people with physical disabilities on using sexual assistive devices
We are seeking individuals with physical disabilities to take part in an online approx. hour-long interview which will be conducted online via Microsoft Teams. The aim of this study is to examine the perspectives of individuals with physical disabilities on the use of sexual assistive devices (for the purpose of this study the term ‘sexual […]
Designing Brain-Computer Interfaces for Individuals with Multiple Sclerosis
Brain-computer interfaces (BCIs) use sensors to record brain activity and translate that activity into user-intended commands, which can be used to control a device. This project aims to understand what individuals with multiple sclerosis would like to see in a BCI so that it is most beneficial to them. This 15-minute survey asks participants to […]