Tailoring nutrition research to the multiple sclerosis (MS) community.

We are inviting adults with multiple sclerosis (MS) living in Australia to participate in an online survey to capture their opinions about the future directions of nutrition research for people with multiple sclerosis. The survey has been designed to include questions that will allow us to gain a better understanding of the needs of the […]

Motherhood choice in multiple sclerosis (MoMS)

The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]

Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.

Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]

ACT-Sydney Multiple Sclerosis (MS) cohort study

As part of the Our Health in Our Hands (OHIOH) project, researchers at the Australian National University and Sydney Adventist Hospital are working together to improve the clinical management and overall health and wellbeing of people living with multiple sclerosis (MS). In this study we are recruiting people with MS as well as people who […]

Testing Brain-Computer Interfaces for Individuals with Multiple Sclerosis

Brain-computer interfaces (BCIs) use sensors to record brain activity and translate that activity into user-intended commands, which can be used to control a device such as your phone or computer. We are investigating how the brain controls movements and how multiple sclerosis may affect the brain’s activity when thinking about movement. This research could provide […]

Anxiety in Multiple Sclerosis

We are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. We are also interested in comparing these factors to those without an illness. Participants will be requested to fill out an online questionnaire at three different time points. Time 1: Fill out an ~30min questionnaire. […]

People with mobility-impairing neurological conditions perspectives about graduated compression stockings to prevent deep vein thrombosis.

This research aims to acquire information on the users’ needs around graduated compression stockings (GCS) and identify the drawbacks of current available GCS designs. Their difficulties in wearing, daily use, and the factors affecting the selection of the compression stockings, will be identified in the online survey and focus group using Zoom. To identify the […]

Project BASE: Changing Behaviour towards Aerobic and Resistance Exercise

Engaging in physical activity is beneficial to the wellbeing of people with MS. The aim of the study is to assess the feasibility of a study designed to involve people with MS in an exercise program. You’ll take part in a four-month at home exercise program, guided by our team of BASE physiotherapists, occupational therapists […]