The use of clinical practice guidelines for the management of multiple sclerosis in Australia
Clinical practice guidelines are often developed to improve care based on the latest evidence. However, there is no official obligation to adhere to guideline recommendations in Australia and it remains unclear whether clinicians use guidelines for MS management. We aim to explore the extent to which MS clinicians providing treatment to people with MS are […]
“Why are young people (still) stuck in residential aged care?”
This research is mixed methods study seeking to understand the NDIS from the perspective of young people living in residential aged care (YPIRAC). It explores the housing needs and preferences of YPIRAC and the barriers experienced in achieving housing choice and control in the NDIS context.
Reproductive Technology in Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorders (ARTiMS)
The purpose of this study is to improve the quality of care that women with Multiple Sclerosis (MS) or Neuromyelitis Optica Spectrum Disorder (NMOSD) receive while using Assisted Reproductive Technology (ART). We’re inviting women with MS or NMOSD who have already used ART to take part in surveys and interviews to discuss if and where […]
Exploring the food journey to inform guidance for persons living with Multiple Sclerosis
Interviews using open-ended questioning to be conducted online (zoom/webex/microsoft teams) for approximately 30-45 minutes. The purpose of this research is to explore the topic of food with individual’s diagnosed with multiple sclerosis (MS) and investigate what factors might influence their experience with food. This project will add to the research to help identify factors that […]
Light Therapy for Fatigue and Daytime Sleepiness in Multiple Sclerosis
Fatigue and excessive daytime sleepiness are common complaints in individuals living with multiple sclerosis (MS). Fatigue and excessive daytime sleepiness are associated with the emergence and exacerbation of cognitive, motor and mood disturbances and over time lead to impaired rehabilitation outcomes, a decline in the capacity to perform daily activities and reduced quality of life. […]
Australian MS Longitudinal Study
The Australian MS Longitudinal Study (AMSLS) is not a clinical trial. It is a survey-based study of life issues, designed to more fully understand the impact of MS, including the individual and overall community impacts. The data from the AMSLS provides a regularly updated, evidence base for a number of stakeholders including health professionals, scientific […]