type of intervention
Non-interventional
recruitment status
Recruiting
region
ACT, NSW, NT, QLD, SA, TAS, VIC, WA
type of ms
Primary progressive MS, Relapsing remitting MS, Secondary progressive MS
There is very little research exploring the nutrition education needs of people with multiple sclerosis (MS) who have a carer who assists with their food preparation. With this project, we aim to find out what dietary changes are made by people with MS who have a carer who assists with their food preparation, and their views on the role of diet in MS. We also aim to find out what dietary resources are needed.
This research is important and will be used to develop resources that fill in the gaps in this field. We will run at least 12 interviews, with each interview involving a person with MS, their carer who is responsible for food preparation, and one person from the research team (the interviewer).
- Criteria for participant with multiple sclerosis
- Live in Australia
- Over 18 years of age
- Diagnosed with multiple sclerosis
- Have a person who assists with food preparation. Note: a can be anyone who assists food preparation such as a paid carer, a non-paid carer, friend, family member, or other.
- Consent to being audio-recorded
- Able to participate in an approximately 1 hour interview conducted via MS teams with the person who helps with their food prep and a member of the research team.
Criteria for carer
- Live in Australia
- Over 18 years of age
- Act as a carer and assist a person with multiple sclerosis with food preparation. Note: a carer can be anyone who assists the person with multiple sclerosis with food preparation such as a paid carer, a non-paid carer, friend, family member, or other.
- Consent to being audio-recorded
- Able to participate in an approximately 1 hour interview conducted via MS teams with the person with multiple sclerosis that they assist with food preparation and a member of the research team
Note: both the person with multiple sclerosis and the carer must consent to being audio recorded and interviewed as a dyad.
- Criteria for participant with multiple sclerosis
- A person who is diagnosed with multiple sclerosis but does not have a carer/anyone who assists with food preparation
2/10/2023
Dr Rebecca Russell (chief investigator) – MSDietProject@curtin.edu.au
21/11/2023
