Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Carers’ experiences of providing care and support for a person living with a long-term health condition
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link:Â https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
A clinical trial for patients with Myelin oligodendrocyte glycoprotein antibody disorder (MogAD)
This is a Global, Multicentre Phase III, Randomised, Double-Blind Clinical Trial. The study will include over 150 adults and adolescents (12-18 years of age) with MOGAD from around the world. Participants will be randomly assigned between treatment arms. In Australia 8 sites will participate in the study, located in NSW, Victoria and Western Australia.
Anxiety in Multiple Sclerosis
We are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. We are also interested in comparing these factors to those without an illness. Participants will be requested to fill out an online questionnaire at three different time points. Time 1: Fill out an ~30min questionnaire. […]
Living Well with MS – Invisible Symptoms, Health Routines and Digital Technology
This study will explore the strategies people with MS use to manage living with unpredictable (and often invisible) symptoms. It will ask about your experience with healthcare and explore how technology may help you manage your MS. The first phase of the project is this 10-minute survey. At the end of the survey, you will […]
MS Genetics Project (GEMS Study)
We need your help to investigate the Epstein-Barr Virus (EBV) strain that may play a crucial role in developing multiple sclerosis (MS). This study also aims to identify specific markers in the blood associated with onset and progression of MS. The knowledge gained will be used to greatly improve MS diagnosis, treatment and prevention.