Healthcare Experiences of People with Multiple Sclerosis or Inflammatory Bowel Disease in Australia
Brief summary A research group at Deakin University is inviting people aged 18 years and over with Multiple Sclerosis (MS) or Inflammatory Bowel Disease (IBD) to share their experiences of diagnosis and management within the Australian healthcare system. Taking part involves completing a short online survey (about 10 minutes) about your demographic and health information […]
Physical activity and exercise among people with advanced multiple sclerosis
Brief summary Physical activity and exercise play important roles in managing multiple sclerosis. While the benefits of physical activity and exercise for individuals with less disability are well-established, the effects in people with more advanced multiple sclerosis, i.e. those who use assistive devices or are non-ambulatory, are less clear. Less is known about the factors […]
Vumerity (Diroximel Fumarate) Prospective MS Pregnancy Exposure Registry
Brief summary This is a global, prospective, observational pregnancy exposure registry designed to evaluate pregnancy and infant outcomes following exposure to diroximel fumarate (Vumerity) in individuals with multiple sclerosis (MS). The registry aims to characterise the risk of major congenital malformations (MCMs) and other adverse pregnancy outcomes associated with DRF exposure during pregnancy.
Lived experience of peripheral oedema in people living with acquired neurological conditions
Brief summary Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling. The information collected from your lived […]
Exploring Self-Management Lifestyle Interventions in People Living with Multiple Sclerosis in Rural and Regional Australia
Brief summary Multiple sclerosis (MS) is an inflammatory neurological disease of the central nervous system. There are several pharmacological treatments available to treat symptoms, relapses, and in some cases, progression, but there is no cure for MS. However, there is evidence that shows lifestyle changes can help people improve mental and physical health, quality of […]
The QUEST Global initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]
Experiences of optic neuritis
Brief summary We are interested to hear from those who have had an episode of optic neuritis in the last 10 years, and learn of your visual experiences following this episode, and your current visual function. The aim of the project is to explore the quality of life and visual experiences of those with optic […]
Eating Well with MS: Improving diet quality among people with multiple sclerosis using digital nutrition education
Brief summary Eating Well With MS is a fully online nutrition education program designed for people living with multiple sclerosis. It aims to improve diet quality by supporting healthy, evidence-based dietary behaviours through practical and accessible education. The program consists of six self-paced modules, taking approximately one hour per week to complete, plus a 3-month […]
Validating scales of fatigue in multiple sclerosis
Brief summary Researchers from the Australian National University (ANU), in Canberra, Australia, are seeking volunteers with multiple sclerosis (MS) to complete an online survey about their experiences of fatigue as part of a study to develop a measure of fatigue for people living with MS. The survey is confidential and should take between 15 and […]
Collecting better data on sleep in people living with MS
Brief summary Measuring sleep well is not straightforward. In this study, we would like to work out how to best measure sleep in people with MS, and we would like to seek your feedback on the acceptability of different ways of measuring sleep. The different ways of measuring include using an activity monitor (a research […]