Clinical trial of lifestyle interventions for weight management in adults living with MS
Obesity can increase the risk of developing MS and may increase levels of disability in those with established MS. Losing weight can help improve more than just body size, but it can be difficult to do and needs the support of a healthcare team to aid behaviour change. This study will use a tested method […]
Multiple Sclerosis and the NDIS: What Does and Doesn’t Work?
These interviews are part of a larger project titled ‘Assessing the impact of the National Disability Insurance Scheme (NDIS)’, funded by MS Australia. It is the first of its kind to produce an overview of National Disability Insurance Scheme (NDIS) access for people with multiple sclerosis in Australia. These interviews will explore the challenges and […]
Social needs screening in MS care
Are you, or do you care for, a person with multiple sclerosis who has experienced unstable housing, family violence, or difficulty paying for food or bills? Researchers from The University of Melbourne invite people with MS and carers of people with MS to participate in focus groups or one-on-one interviews to explore how we can […]
Reinforcement Learning in MS
The main aim of the present study is to understand how the context of risks affect learning. The project involves patients with Multiple Sclerosis and healthy controls to complete online questionnaires and play a series of decision making games.
Fatigue In Relapsing Multiple Sclerosis – Epstein Barr Virus (FIRMS-EBV) Treatment Trial
Fatigue is a common symptom for many people with MS and it does not respond to traditional MS treatments. It has been suggested that fatigue in MS could relate to chronic infection with the Epstein Barr Virus (EBV). In this clinical trial, two drug therapies with antiviral effects against EBV will be tested for their […]
The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia.
Researchers from the College of Health and Medicine at the Australian National University are conducting a survey to examine the impact of out-of-pocket health costs on people with chronic conditions and carers. Understanding the impact of these on the day-to-day lives of people living with chronic conditions will provide important new knowledge, and an opportunity […]
Tailoring nutrition research to the multiple sclerosis (MS) community.
We are inviting adults with multiple sclerosis (MS) living in Australia to participate in an online survey to capture their opinions about the future directions of nutrition research for people with multiple sclerosis. The survey has been designed to include questions that will allow us to gain a better understanding of the needs of the […]
Developing ‘Nutrition and MS’ educational tool for healthcare professionals: Gathering healthcare professionals and people living with MS perspectives through separate co-design workshops
What is a co-design workshop? A collaborative session where your insights and ideas will help us design an educational tool on nutrition and MS for healthcare professionals. This is going to be a separate workshop for healthcare professionals and people living with MS. Why participate? Your experience and insights are invaluable. Together, we […]
Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Determining factors influencing implementation decisions in healthcare
This study aims to ascertain relevant considerations and contextual factors that influence stakeholders’ decisions to implement innovations. An innovation may be a new intervention, strategy, model of care, or therapy. This study has a particular focus on economic factors but will also explore non-economic factors influencing implementation. We will use a discrete choice experiment methodology […]