The use of clinical practice guidelines for the management of multiple sclerosis in Australia
Clinical practice guidelines are often developed to improve care based on the latest evidence. However, there is no official obligation to adhere to guideline recommendations in Australia and it remains unclear whether clinicians use guidelines for MS management. We aim to explore the extent to which MS clinicians providing treatment to people with MS are […]
Exploring the use and need for lifestyle management of multiple sclerosis
This study is a survey of people living with Multiple Sclerosis to explore the use of lifestyle factors such as nutrition, exercise and stress management for symptom management. It will investigate the need for information, priorities for lifestyle areas and opinions in relation health care support for this form of self-management.
“Why are young people (still) stuck in residential aged care?”
This research is mixed methods study seeking to understand the NDIS from the perspective of young people living in residential aged care (YPIRAC). It explores the housing needs and preferences of YPIRAC and the barriers experienced in achieving housing choice and control in the NDIS context.
Reproductive Technology in Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorders (ARTiMS)
The purpose of this study is to improve the quality of care that women with Multiple Sclerosis (MS) or Neuromyelitis Optica Spectrum Disorder (NMOSD) receive while using Assisted Reproductive Technology (ART). We’re inviting women with MS or NMOSD who have already used ART to take part in surveys and interviews to discuss if and where […]
Project BASE: Changing Behaviour towards Aerobic and Resistance Exercise
Engaging in physical activity is beneficial to the wellbeing of people with MS. The aim of the study is to assess the feasibility of a study designed to involve people with MS in an exercise program. You’ll take part in a four-month at home exercise program, guided by our team of BASE physiotherapists, occupational therapists […]
Australian Physiotherapy and Occupational Therapy insights on implementing beach-based therapeutic interventions for people with disability
This survey aims to: (i) Identify the benefits, barriers, and facilitators of beach access for people with disability. (ii) Explore how the beach could be used as a setting for therapeutic interventions.
Social connectedness and long-term health conditions
This is a qualitative research study that aims to gain a better understanding of the experiences of loneliness of people living with long-term health conditions (such as MS). We have already finalised recruitment for participants living with long-term health conditions and are now seeking health- and community-care professionals who provide care and support for people […]
Investigating social cognitive factors associated with chronic non-cancer pain and pain management
Do you have chronic pain? Researchers from The University of Queensland are looking for people aged 18 and over to participate in a short 20-minute online survey to understand the thoughts and feelings that might influence pain management. Participants will go into the draw to win 1 of 2 $100 gift cards. For more information […]
Exploring the food journey to inform guidance for persons living with Multiple Sclerosis
Interviews using open-ended questioning to be conducted online (zoom/webex/microsoft teams) for approximately 30-45 minutes. The purpose of this research is to explore the topic of food with individual’s diagnosed with multiple sclerosis (MS) and investigate what factors might influence their experience with food. This project will add to the research to help identify factors that […]
Light Therapy for Fatigue and Daytime Sleepiness in Multiple Sclerosis
Fatigue and excessive daytime sleepiness are common complaints in individuals living with multiple sclerosis (MS). Fatigue and excessive daytime sleepiness are associated with the emergence and exacerbation of cognitive, motor and mood disturbances and over time lead to impaired rehabilitation outcomes, a decline in the capacity to perform daily activities and reduced quality of life. […]