Physical activity and exercise among people with advanced multiple sclerosis
Brief summary Physical activity and exercise play important roles in managing multiple sclerosis. While the benefits of physical activity and exercise for individuals with less disability are well-established, the effects in people with more advanced multiple sclerosis, i.e. those who use assistive devices or are non-ambulatory, are less clear. Less is known about the factors […]
Vumerity (Diroximel Fumarate) Prospective MS Pregnancy Exposure Registry
Brief summary This is a global, prospective, observational pregnancy exposure registry designed to evaluate pregnancy and infant outcomes following exposure to diroximel fumarate (Vumerity) in individuals with multiple sclerosis (MS). The registry aims to characterise the risk of major congenital malformations (MCMs) and other adverse pregnancy outcomes associated with DRF exposure during pregnancy.
Lived experience of peripheral oedema in people living with acquired neurological conditions
Brief summary Researchers from the ALERT Centre at Macquarie University are inviting you to participate in an online survey aimed at exploring experiences of those diagnosed with acquired neurological conditions including Multiple Sclerosis, Spinal Cord Injury, Motor Neuron Disease and/or post stroke and living with oedema, lymphoedema or swelling. The information collected from your lived […]
Exploring Self-Management Lifestyle Interventions in People Living with Multiple Sclerosis in Rural and Regional Australia
Brief summary Multiple sclerosis (MS) is an inflammatory neurological disease of the central nervous system. There are several pharmacological treatments available to treat symptoms, relapses, and in some cases, progression, but there is no cure for MS. However, there is evidence that shows lifestyle changes can help people improve mental and physical health, quality of […]
The QUEST Global initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]
Experiences of optic neuritis
Brief summary We are interested to hear from those who have had an episode of optic neuritis in the last 10 years, and learn of your visual experiences following this episode, and your current visual function. The aim of the project is to explore the quality of life and visual experiences of those with optic […]
Eating Well with MS: Improving diet quality among people with multiple sclerosis using digital nutrition education
Brief summary Eating Well With MS is a fully online nutrition education program designed for people living with multiple sclerosis. It aims to improve diet quality by supporting healthy, evidence-based dietary behaviours through practical and accessible education. The program consists of six self-paced modules, taking approximately one hour per week to complete, plus a 3-month […]
Three-dimensional texture modified food printing for people with multiple sclerosis-related dysphagia
Brief summary This research explores the feasibility, acceptability, and implementation of 3D-printed texture-modified foods for individuals with multiple sclerosis (MS) who experience dysphagia (chewing and swallowing difficulties). The project aims to identify facilitators and barriers to incorporating these innovative food options into MS diets, focusing on nutritional adequacy, sensory appeal, and practical considerations. The study […]
HeARTS Physical activity factors among people living with multiple sclerosis
Brief summary Join the HeARTS Global Survey! Are you living with multiple sclerosis (MS)? Your experience matters! The HeARTS global survey, coordinated by the European Network for Research and Best Practice in MS Rehabilitation (RIMS), aims to better understand physical activity levels in people with MS across all abilities and countries. Your input will help […]
Validating scales of fatigue in multiple sclerosis
Brief summary Researchers from the Australian National University (ANU), in Canberra, Australia, are seeking volunteers with multiple sclerosis (MS) to complete an online survey about their experiences of fatigue as part of a study to develop a measure of fatigue for people living with MS. The survey is confidential and should take between 15 and […]