Non-interventional - Survey
The goal of this project is to better understand people’s experiences with and adjustment to Multiple Sclerosis. If you choose to take part you will be invited to complete an online survey. The survey will take approximately 30 minutes to complete. Participants will be asked a range of questions relating to the following: background (e.g. age, education), MS history (e.g. diagnosis, relapses), your experience with adjustment to MS (e.g. health and wellbeing). There will be questions about your ability to identify positive aspects of your experience with MS, and about the way you view yourself. Lastly, the survey will also ask about the way you work with your emotions when pursuing important personal goals.
As some of these questions will invite you to reflect on your experience with MS and this might bring up difficult emotions, please take care of yourself during this process. If you wish to leave the questionnaire you are free to exit the page at any time. Please find some sources of support and further information below. To account for possible fatigue, please be aware that if you wish to leave the survey for some time, your process/responses will be saved while the tab remains open on your webpage, and you will be able to return when you are ready to continue.
(Please see attached Participant Information Sheet for a detailed summary).
A) Aged 18 or over
B) English speakers
C) Formal diagnosis of MS (self-reported)
a) Non-English speaking
b) Experiencing severe depressive symptoms (participants will be screened based on their Patient Health Questionnaire-9 (PHQ-9; Spitzer et al., 1999) scores).
If you have any questions about our project, either now or in the future, please feel free to contact either: Haya Karadsheh (firstname.lastname@example.org) or Dr. Raluca Topciu (email@example.com).
If you are not happy with any aspect of this project please contact the University Research Ethics and Governance Team (firstname.lastname@example.org) or Co-chairs of the Psychology Ethics Committee, University of Exeter, Professor Ian McLaren (email@example.com) and Ciro Civile (firstname.lastname@example.org).
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