Reinforcement Learning in MS
The main aim of the present study is to understand how the context of risks affect learning. The project involves patients with Multiple Sclerosis and healthy controls to complete online questionnaires and play a series of decision making games.
Making it Personal: Identifying personalised triggers of fatigue in multiple sclerosis using N-of-1 studies
This research study aims to discover factors that worsen feelings of fatigue in people living with multiple sclerosis (MS). Most research studies explore topics like this using scientific approaches that report the average results of a large group of people, rather than focusing on identifying results for each individual. As a result, there is limited […]
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link: https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
People with mobility-impairing neurological conditions perspectives about graduated compression stockings to prevent deep vein thrombosis.
This research aims to acquire information on the users’ needs around graduated compression stockings (GCS) and identify the drawbacks of current available GCS designs. Their difficulties in wearing, daily use, and the factors affecting the selection of the compression stockings, will be identified in the online survey and focus group using Zoom. To identify the […]
Reproductive Technology in Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorders (ARTiMS)
The purpose of this study is to improve the quality of care that women with Multiple Sclerosis (MS) or Neuromyelitis Optica Spectrum Disorder (NMOSD) receive while using Assisted Reproductive Technology (ART). We’re inviting women with MS or NMOSD who have already used ART to take part in surveys and interviews to discuss if and where […]
An investigation of a novel mechanism of obstructive sleep apnoea (OSA) in people with Multiple Sclerosis (MS)
Multiple sclerosis (MS) and obstructive sleep apnoea co-occur frequently with shared symptoms such as fatigue, depression and cognitive impairment which when together may be more severe and difficult to manage. The mechanisms for the high prevalence of sleep apnoea in people with MS are unclear. Understanding the causes of sleep apnoea in people with MS […]
An Open Label Observational Study of Safety and Efficacy of a Pharmaceutical grade Cannabis Medicine (MediCabilis™-CBD extract Oil) in Patients undergoing Medicinal Cannabis Therapy for Different Indications
This study is a nation-wide observational study aiming to assess the safety, tolerability and efficacy of a non-intoxicating cannabidiol-dominant medicinal cannabis in managing chronic conditions that haven’t responded well to traditional treatment options, including multiple sclerosis. Patients who are prescribed Bod medicinal cannabis and meet the eligibility criteria will be able to participate in this […]
The QUEST initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life and if this changes […]
Australian MS Longitudinal Study
The Australian MS Longitudinal Study (AMSLS) is not a clinical trial. It is a survey-based study of life issues, designed to more fully understand the impact of MS, including the individual and overall community impacts. The data from the AMSLS provides a regularly updated, evidence base for a number of stakeholders including health professionals, scientific […]