Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
Making it Personal: Identifying personalised triggers of fatigue in multiple sclerosis using N-of-1 studies
This research study aims to discover factors that worsen feelings of fatigue in people living with multiple sclerosis (MS). Most research studies explore topics like this using scientific approaches that report the average results of a large group of people, rather than focusing on identifying results for each individual. As a result, there is limited […]
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link: https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
Relationships between Objective Sleep, Mental Health, Fatigue, and Sleep Disorders in MS
People with MS commonly report having poor sleep. Not much is known about how fatigue, sleeping issues like insomnia, and mental health issues like depression or anxiety are related to sleep in people with MS. These are common symptoms in MS but are poorly understood in research and clinical practice. This research represents an important […]
People with mobility-impairing neurological conditions perspectives about graduated compression stockings to prevent deep vein thrombosis.
This research aims to acquire information on the users’ needs around graduated compression stockings (GCS) and identify the drawbacks of current available GCS designs. Their difficulties in wearing, daily use, and the factors affecting the selection of the compression stockings, will be identified in the online survey and focus group using Zoom. To identify the […]
Living Well with MS – Invisible Symptoms, Health Routines and Digital Technology
This study will explore the strategies people with MS use to manage living with unpredictable (and often invisible) symptoms. It will ask about your experience with healthcare and explore how technology may help you manage your MS. The first phase of the project is this 10-minute survey. At the end of the survey, you will […]
Understanding the perspectives of people with physical disabilities on using sexual assistive devices
We are seeking individuals with physical disabilities to take part in an online approx. hour-long interview which will be conducted online via Microsoft Teams. The aim of this study is to examine the perspectives of individuals with physical disabilities on the use of sexual assistive devices (for the purpose of this study the term ‘sexual […]