Developing ‘Nutrition and MS’ educational tool for healthcare professionals: Gathering healthcare professionals and people living with MS perspectives through separate co-design workshops
What is a co-design workshop? A collaborative session where your insights and ideas will help us design an educational tool on nutrition and MS for healthcare professionals. This is going to be a separate workshop for healthcare professionals and people living with MS. Why participate? Your experience and insights are invaluable. Together, we […]
Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Carers’ experiences of providing care and support for a person living with a long-term health condition
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
Making it Personal: Identifying personalised triggers of fatigue in multiple sclerosis using N-of-1 studies
This research study aims to discover factors that worsen feelings of fatigue in people living with multiple sclerosis (MS). Most research studies explore topics like this using scientific approaches that report the average results of a large group of people, rather than focusing on identifying results for each individual. As a result, there is limited […]
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link: https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
MS Genetics Project (GEMS Study)
We need your help to investigate the Epstein-Barr Virus (EBV) strain that may play a crucial role in developing multiple sclerosis (MS). This study also aims to identify specific markers in the blood associated with onset and progression of MS. The knowledge gained will be used to greatly improve MS diagnosis, treatment and prevention.