Social connectedness and long-term health conditions
This is a qualitative research study that aims to gain a better understanding of the experiences of loneliness of people living with long-term health conditions (such as MS). We have already finalised recruitment for participants living with long-term health conditions and are now seeking health- and community-care professionals who provide care and support for people […]
Investigating social cognitive factors associated with chronic non-cancer pain and pain management
Do you have chronic pain? Researchers from The University of Queensland are looking for people aged 18 and over to participate in a short 20-minute online survey to understand the thoughts and feelings that might influence pain management. Participants will go into the draw to win 1 of 2 $100 gift cards. For more information […]
Reducing the frequency of Autoimmune adverse events in the treatment of Multiple sclerosis with alemtuzumab using B-celL dEpletion (RAMBLE): a phase II, randomised, placebo-controlled clinical trial
To reduce the occurrence of autoimmune adverse events from the treatment of multiple sclerosis (MS) with alemtuzumab through the subsequent targeted use of rituximab. The hypothesis to be tested is that rituximab therapy following alemtuzumab treatment for MS will reduce the frequency of autoimmune adverse events. If this strategy proves to be safe and is […]
Exploring the food journey to inform guidance for persons living with Multiple Sclerosis
Interviews using open-ended questioning to be conducted online (zoom/webex/microsoft teams) for approximately 30-45 minutes. The purpose of this research is to explore the topic of food with individual’s diagnosed with multiple sclerosis (MS) and investigate what factors might influence their experience with food. This project will add to the research to help identify factors that […]
Light Therapy for Fatigue and Daytime Sleepiness in Multiple Sclerosis
Fatigue and excessive daytime sleepiness are common complaints in individuals living with multiple sclerosis (MS). Fatigue and excessive daytime sleepiness are associated with the emergence and exacerbation of cognitive, motor and mood disturbances and over time lead to impaired rehabilitation outcomes, a decline in the capacity to perform daily activities and reduced quality of life. […]
SARS-CoV-2 antibody after COVID-19 vaccination in patients with multiple sclerosis
COVID-19 vaccines are now being rolled out. Many people living with MS are treated with drugs that affect their immune system, and there is not a lot of specific data relating to the administration of the COVID-19 vaccines to a person with MS who is treated for their disease. This is a multi-center study to […]
An Open Label Observational Study of Safety and Efficacy of a Pharmaceutical grade Cannabis Medicine (MediCabilis™-CBD extract Oil) in Patients undergoing Medicinal Cannabis Therapy for Different Indications
This study is a nation-wide observational study aiming to assess the safety, tolerability and efficacy of a non-intoxicating cannabidiol-dominant medicinal cannabis in managing chronic conditions that haven’t responded well to traditional treatment options, including multiple sclerosis. Patients who are prescribed Bod medicinal cannabis and meet the eligibility criteria will be able to participate in this […]
The QUEST initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life and if this changes […]
Crisis resilience in persons with multiple sclerosis (C-RIMS)
Community disasters, such as floods and bushfires, affect many towns and communities. The crisis can last for several months, with effects being felt for much longer. Prior preparation for a crisis can help with feelings of coping and maintaining your health during this time. There are a number of tools available to help you prepare […]
Australian MS Longitudinal Study
The Australian MS Longitudinal Study (AMSLS) is not a clinical trial. It is a survey-based study of life issues, designed to more fully understand the impact of MS, including the individual and overall community impacts. The data from the AMSLS provides a regularly updated, evidence base for a number of stakeholders including health professionals, scientific […]