Social connectedness and long-term health conditions

This is a qualitative research study that aims to gain a better understanding of the experiences of loneliness of people living with long-term health conditions (such as MS). We have already finalised recruitment for participants living with long-term health conditions and are now seeking health- and community-care professionals who provide care and support for people […]

Exploring the food journey to inform guidance for persons living with Multiple Sclerosis

Interviews using open-ended questioning to be conducted online (zoom/webex/microsoft teams) for approximately 30-45 minutes. The purpose of this research is to explore the topic of food with individual’s diagnosed with multiple sclerosis (MS) and investigate what factors might influence their experience with food. This project will add to the research to help identify factors that […]

Light Therapy for Fatigue and Daytime Sleepiness in Multiple Sclerosis

Fatigue and excessive daytime sleepiness are common complaints in individuals living with multiple sclerosis (MS). Fatigue and excessive daytime sleepiness are associated with the emergence and exacerbation of cognitive, motor and mood disturbances and over time lead to impaired rehabilitation outcomes, a decline in the capacity to perform daily activities and reduced quality of life. […]

Crisis resilience in persons with multiple sclerosis (C-RIMS)

Community disasters, such as floods and bushfires, affect many towns and communities. The crisis can last for several months, with effects being felt for much longer. Prior preparation for a crisis can help with feelings of coping and maintaining your health during this time. There are a number of tools available to help you prepare […]

Australian MS Longitudinal Study

The Australian MS Longitudinal Study (AMSLS) is not a clinical trial. It is a survey-based study of life issues, designed to more fully understand the impact of MS, including the individual and overall community impacts. The data from the AMSLS provides a regularly updated, evidence base for a number of stakeholders including health professionals, scientific […]