Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Determining factors influencing implementation decisions in healthcare
This study aims to ascertain relevant considerations and contextual factors that influence stakeholders’ decisions to implement innovations. An innovation may be a new intervention, strategy, model of care, or therapy. This study has a particular focus on economic factors but will also explore non-economic factors influencing implementation. We will use a discrete choice experiment methodology […]
Measuring mobility that matters to persons with multiple sclerosis: A co-design consumer engagement and Photovoice approach.
Through co-design and participatory action research we aim to establish which aspects of walking impact the participation in life activities of persons with multiple sclerosis and co-design walking outcomes that reflect the priorities of persons with multiple sclerosis. You will be asked to take photos of contexts where your walking impairment has impacted your ability […]
Carers’ experiences of providing care and support for a person living with a long-term health condition
Exploring the perspectives of people with MS towards the integration of nutrition education within routine healthcare consultations
Healthcare professionals and the need to integrate nutrition care into routine MS Care.
The MS Family Study
Researchers from the Menzies Institute for Medical Research are seeking participants who come from families with multiple relatives affected by multiple sclerosis (MS). By analysing the genetic code of such families, the researchers want to better understand the inherited risk of MS.
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link:Â https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
ACT-Sydney Multiple Sclerosis (MS) cohort study
As part of the Our Health in Our Hands (OHIOH) project, researchers at the Australian National University and Sydney Adventist Hospital are working together to improve the clinical management and overall health and wellbeing of people living with multiple sclerosis (MS). In this study we are recruiting people with MS as well as people who […]
Anxiety in Multiple Sclerosis
We are interested in identifying psychological factors that contribute to the development and maintenance of anxiety in individuals with MS. We are also interested in comparing these factors to those without an illness. Participants will be requested to fill out an online questionnaire at three different time points. Time 1: Fill out an ~30min questionnaire. […]