Validating scales of fatigue in multiple sclerosis
Brief summary Researchers from the Australian National University (ANU), in Canberra, Australia, are seeking volunteers with multiple sclerosis (MS) to complete an online survey about their experiences of fatigue as part of a study to develop a measure of fatigue for people living with MS. The survey is confidential and should take between 15 and […]
Collecting better data on sleep in people living with MS
Brief summary Measuring sleep well is not straightforward. In this study, we would like to work out how to best measure sleep in people with MS, and we would like to seek your feedback on the acceptability of different ways of measuring sleep. The different ways of measuring include using an activity monitor (a research […]
A co-design study to develop a tailored internet psychological intervention for depression among individuals with MS
The aim of this project is to use a co-design study to inform the development of an internet-based intervention for depression targeting individuals with multiple sclerosis (MS). We will run co-design/focus groups or individual interviews with individuals with MS, health professionals who treat individuals with MS and carers of those with MS. We aim to […]
The Multiple Sclerosis Australian Women’s Midlife Years (MS-AMY) Study
Researchers at Monash University are undertaking a study to understand the physical health and psychological, sexual and socioeconomic wellbeing of Australian midlife women living with MS. The team wants to assess the contribution of common midlife circumstances, including the impact of menopause, on the quality of life of women living with MS. Surprisingly very little […]
STRONG-MS: Bone health and muscle health in MS
This study is a randomised controlled trial evaluating ONERO™. This is a High-intensity Resistance and Impact Training (HiRIT) exercise intervention that has potential benefits for bone health and muscle strength in people with (MS). Qualified physiotherapists will supervise balance exercises, impact movements and weightlifting in twice-weekly, 30-minute sessions. Participation involves a total of 24 months. […]
The QUEST initiative: QUality of life Evaluation STudy: Assessing Health Related Quality of Life in patients receiving medicinal cannabis
You are invited to take part in a research study exploring quality of life and health economic impacts in patients accessing medicinal cannabis. People accessing medicinal cannabis may have a range of conditions and symptoms that impact their quality of life. We would like to know how these conditions and symptoms impact quality of life […]