Clinical Trials

Experiences of social connectedness and loneliness for people living with long-term health conditions

Type of Study/Intervention


Recruitment Status


Form of MS

Relapsing remitting MS, Secondary progressive MS, Primary progressive MS, Clinically isolated syndrome, Relapsing MS, People without MS

Brief summary

This three-year study aims to gain a better understanding of the experiences of feeling socially connected, belonging and loneliness of people living with a long-term health condition (e.g., MS, diabetes, severe asthma). The study will explore how people live with their health condition, their experiences of social relationships and supports, and how they cope with feelings of loneliness or social isolation. The study also aims to explore the experiences of health- and community-care professionals who provide care and support for people experiencing social isolation or loneliness.

The study is funded by the Australian Research Council (ARC) and is being carried out by Dr Sophie Lewis, UNSW Sydney, Professor Karen Willis, Victoria University, Melbourne and Professor Lorraine Smith, The University of Sydney. The study findings will provide a better understanding of social connectedness and loneliness to guide health practice and policy to improve support and care for people living with long-term health conditions.

Inclusion criteria

Aged 18 years or older and living with a long-term physical health condition

Anticipated start date

January 2021-June 2023

Recruitment contacts

Dr Maja Moensted, Postdoctoral Research Associate, UNSW Sydney (02) 9385 6946,

Dr Sophie Lewis, Senior Research Fellow, UNSW Sydney,



Ethics Approval

Yes. UNSW Human Research Ethics approval (HC200333).

Last updated

9 June 2021

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