Psychological support in Multiple Sclerosis

Type of Study/Intervention

Non-interventional

Recruitment Status

Recruiting

Form of MS

Relapsing remitting MS, Relapsing MS, Secondary progressive MS, Primary progressive MS, Clinically isolated syndrome

Brief summary

Psychological and medical literature suggests that people with MS are more prone to mental health problems which highlights the heightened need for such services to be made available for this population. Whilst there are some different types of support available to people with MS, not all are accessible or suitable to match the varying needs of different people living with MS. The purpose of our survey is to give people with MS the chance to have their say in what they would like to be made available to them to support them with mental health difficulties. The information that we obtain from this survey will be used to develop an intervention based on people’s experiences of psychological support since their diagnosis of MS, as well as their thoughts on what they would like in terms of content and how it is delivered. By relying on the input directly from people living with MS we will be able to develop something more suitable to the varying needs of people with MS.

Inclusion criteria

People with MS (or can be completed by a carer of someone with MS on their behalf)

Exclusion criteria

People who don’t have MS or who are not representing someone with MS

Anticipated start date

Data collection has commenced and the survey is active.

Recruitment contacts

Hannah Morris-Bankole ([email protected])

Supervisor: Aileen Ho ([email protected])

Further details

Full details of the trial can be found on https://research.reading.ac.uk/neurodegenerative-diseases/multiple-sclerosis/ (Link to the survey and further information can be obtained by clicking the survey link at the bottom of the website address provided).