Online surveys: Pregnant women with Multiple Sclerosis & another long-term physical/mental health condition
Type of Study/Intervention
Form of MS
Relapsing MS, Relapsing remitting MS, Secondary progressive MS, Primary progressive MS, Clinically isolated syndrome
Increasingly women are entering pregnancy with 2 or more long-term physical / mental health conditions. This can include Multiple Sclerosis.
We want to study how this may impact on the women, their pregnancy, and their babies. We first want to find out what research outcomes are important to women with multiple long-term conditions and their health professionals. This will ensure researchers are measuring outcomes that matters to them.
The study aims to gather consensus from stakeholders (women with Multiple Sclerosis and clinicians) on a minimum standard list of outcomes. This list of core outcomes should be reported in all studies for pregnant women with 2 or more long-term conditions.
For more information and to access the survey:
(i) Women with 2 or more long-term physical / mental health conditions (including Multiple Sclerosis, other examples), AND pregnant in the last 5 years / planning a pregnancy
(ii) Partners / family members / carers for pregnant women with 2 or more long-term conditions
(iii) Health / social care professionals caring for pregnant women with 2 or more long-term conditions or their children
(iv) Researchers interested in multiple long-term conditions in pregnancy
Anticipated start date
Survey opened on 28th April 2022. First round of survey will close on 31st May 2022
Siang Ing Lee, MuM-PreDiCT Clinical Research Fellow, University of Birmingham (UK)
Study protocol: https://bmjopen.bmj.com/content/11/10/e044919.long
Study blog: https://mumpredict.org/survey-help-prioritise-a-list-of-outcomes/
Participant information sheet & survey: https://bham.onlinesurveys.ac.uk/delphi-survey-core-outcome-set-mumpredict