Brief summary

Increasingly women are entering pregnancy with 2 or more long-term physical / mental health conditions. This can include Multiple Sclerosis.

We want to study how this may impact on the women, their pregnancy, and their babies. We first want to find out what research outcomes are important to women with multiple long-term conditions and their health professionals. This will ensure researchers are measuring outcomes that matters to them.
The study aims to gather consensus from stakeholders (women with Multiple Sclerosis and clinicians) on a minimum standard list of outcomes. This list of core outcomes should be reported in all studies for pregnant women with 2 or more long-term conditions.

For more information and to access the survey:
https://bham.onlinesurveys.ac.uk/delphi-survey-core-outcome-set-mumpredict

Inclusion criteria

(i) Women with 2 or more long-term physical / mental health conditions (including Multiple Sclerosis, other examples), AND pregnant in the last 5 years / planning a pregnancy
(ii) Partners / family members / carers for pregnant women with 2 or more long-term conditions
(iii) Health / social care professionals caring for pregnant women with 2 or more long-term conditions or their children
(iv) Researchers interested in multiple long-term conditions in pregnancy

Anticipated start date

Survey opened on 28th April 2022. First round of survey will close on 31st May 2022

Recruitment contacts

Siang Ing Lee, MuM-PreDiCT Clinical Research Fellow, University of Birmingham (UK)
Email: s.i.lee@bham.ac.uk

Further details

Study protocol: https://bmjopen.bmj.com/content/11/10/e044919.long
Study blog: https://mumpredict.org/survey-help-prioritise-a-list-of-outcomes/
Participant information sheet & survey: https://bham.onlinesurveys.ac.uk/delphi-survey-core-outcome-set-mumpredict

Region

NSW/ACT/SA/VIC/QLD/WA/TAS/NT/NZ

Ethics approval

Yes

Last updated

20/05/2022