Clinical Trials

Person-first versus identity-first language: Informing client-centred care

Type of Study/Intervention

Non-interventional

Recruitment Status

Recruiting

Form of MS

Relapsing MS, Relapsing remitting MS, Secondary progressive MS, Primary progressive MS, Clinically isolated syndrome

Brief summary

This research aims to understand the preferences of people with a health condition/disability when it comes to the use of person-first (e.g. person with MS) versus identity-first (e.g. MSer) language. This research will also assess whether the type of disability/health condition or its severity is related to language preference and quality of life. This research is important to expand the understanding about how people with disabilities or health conditions prefer to be referenced, as well as factors that may influence preferences, to maximise respectful language use when address people across different disabilities and health conditions.

Inclusion criteria

People with a self-reported disability/health condition

Exclusion criteria

Friends, family and associates of people with disabilities/health conditions

Anticipated start date

Already started

Recruitment contacts

Dr Lisa Grech, 0410 947 444 or lisa.grech@monash.edu

Further details

Please follow the link to be directed to participant information, consent and the study survey: https://monash.az1.qualtrics.com/jfe/form/SV_er1v2XcWADDa62O

Region

NSW/ACT/SA/VIC/QLD/WA/TAS/NT/NZ

Ethics approval

Yes

Last updated

18/08/2021

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