INSPIRE-Flare
Brief summary This research explores patient experiences of flares in their autoimmune diseases. We are interested in how patients define disease flares, the triggers and preventers of flares and the order of symptoms in flares. Through this research, we aim to improve understanding, recognition and early treatment for flares in autoimmune diseases. To take part, […]
Reinforcement Learning in MS
The main aim of the present study is to understand how the context of risks affect learning. The project involves patients with Multiple Sclerosis and healthy controls to complete online questionnaires and play a series of decision making games.
The Acceptability and Effectiveness of an ACT-informed Guided Self-Help Programme on Post-Diagnostic Adjustment and Self-Concept in Individuals with Multiple Sclerosis
The general aim of this study is to assess whether an Acceptance and Commitment Therapy (ACT) informed programme can positively influence the adjustment and self-concept of people who have been diagnosed with MS over the past 5 years. The study will also look at how the above can influence mental well-being. Acceptance and Commitment Therapy […]
Motherhood choice in multiple sclerosis (MoMS)
The study aims to pilot two developed questionnaires about MS and pregnancy/motherhood in different countries and to explore the needs of women with MS who considering pregnancy. One of the questionnaires, the motherhood/pregnancy choice and worries questionnaire (MPWQ), is designed to measure concerns, attitudes and coping strategies regarding pregnancy and motherhood. [1, 2] The second […]
Improving Bone Health in MS
This survey study aims to understand the current awareness and healthcare and lifestyle management of bone health, osteoporosis and fracture risk in people with MS. Participation is via completion of a 30 minute survey that can be accessed at the following link: https://monash.az1.qualtrics.com/jfe/form/SV_0BLYJMYoHbL3uLk
Efficacy and Safety of Ofatumumab and Siponimod Compared to Fingolimod in Pediatric Patients With Multiple Sclerosis (NEOS)
Efficacy and safety of ofatumumab and siponimod compared to fingolimod in pediatric patients with multiple sclerosis
Adjustment to Multiple Sclerosis: Exploring the Roles of Benefit Finding, Identity Reconstruction and Psychological Flexibility.
The goal of this project is to better understand people’s experiences with and adjustment to Multiple Sclerosis. If you choose to take part you will be invited to complete an online survey. The survey will take approximately 30 minutes to complete. Participants will be asked a range of questions relating to the following: background (e.g. […]
Understanding the perspectives of people with physical disabilities on using sexual assistive devices
We are seeking individuals with physical disabilities to take part in an online approx. hour-long interview which will be conducted online via Microsoft Teams. The aim of this study is to examine the perspectives of individuals with physical disabilities on the use of sexual assistive devices (for the purpose of this study the term ‘sexual […]